This video is intended for CEMEA audiences. La PHA est une maladie chronique et invalidante qui a un impact néfaste sur la qualité de vie des patients et de leur…
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This video is intended for CEMEA audiences. Já neudělám prostě to, co udělá zdravý člověk. Zdravý člověk udělá tu práci za hodinu. Já to dělám třeba dva dny. A jsem…
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This video was created for UK and Irish audiences. Alnylam is the world’s leading RNA interference (RNAi) company and has pioneered the 2006 Nobel Prize-winning discovery of RNAi into an…
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This video is approved for CEMEA audiences. Para una persona que acaba de ser diagnosticada de porfiria aguda intermitente, mi mensaje sería que no se venga abajo, que no desespere.…
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This video is intended for CEMEA audiences. AHP ist eine chronische Erkrankung, die das Leben der Patienten und ihrer Angehörigen stark belasten kann. Hören Sie von Eva, wie bei ihr…
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This video is created for US audiences. In this video Seth, as a combined liver/kidney transplant recipient, discusses his experience with kidney failure and being diagnosed with primary hyperoxaluria type…
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This video was created for US audiences. Sylvie Le Moal from the Association Française des Malades Atteints de Porphyrie discusses the importance of raising awareness of porphyria, a rare, often…
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This video was created for CEMEA audiences. Stephanie, from Germany, shares the story of her husband Jorg, who sadly passed away from Primary Hyperoxaluria Type 1 (PH1) in 2018. She…
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This video is intended for CEMEA audiences. “När man har en akut attack av porfyri så har man så oerhört ont i hela magregionen och bröstkorgen. Det är svårt att…
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This video was created for US audiences. Dr. Thorsten Schweikardt from Selbsthilfe EPP e.V. and Sabine von Wegerer from Berliner Leberring e.V discuss the importance of raising awareness of porphyria,…
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