ATIVESITE | Journeys Through Pulmonary Fibrosis Ep2 – The Unquestioned Support of Patient Organizations

In this episode, host Steve Jones delves into the extraordinary lives of Scott and John. Watch as the group discusses the many different ways in which patient organizations provide support, globally and locally.
This episode features:

• Steve Jones, President of the European Pulmonary Fibrosis Federation, who is hosting the conversation.
• Scott Staszak, Chief Operating Officer of Pulmonary Fibrosis Foundation based in Chicago, who was stunned to discover that three years into his time at the foundation, his mother was diagnosed with idiopathic pulmonary fibrosis.
• John Solheim, living with pulmonary fibrosis, who is a volunteer providing ‘patient to patient’ support through a hotline in Norway, where he gets to speak with people in the same situation as himself.
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The links to organizations featured in this episode are listed below. We encourage you to reach out to them to get in touch with your local PF community.

Pulmonary Fibrosis Foundation: https://www.pulmonaryfibrosis.org/
European Pulmonary Fibrosis Federation: https://www.eu-pff.org/
Norwegian National Patient Organization for Heart and Lung Patients: https://www.lhl.no/

Source Boehringer Ingelheim YouTube