Muscular Dystrophy Association

ATIVESITE | MDA Advocate John Gaudet Urges Congress to Improve Air Travel for People Living with Disabilities

MDA Advocate John Gaudet shares his personal story about how inaccessible air travel affected his life and urges Congress to take action by passing the Air Carrier Access Amendments Act.…

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ATIVESITE | MDA Advocates Amy & Jamie Shinneman #NationalCaregiverMonth

MDA Advocate Amy Shinneman invites us home to show appreciation for her caregiver husband, Jamie. Thank you to all our caregivers at MDA #NationalCaregiversMonth #MuscularDystrophy #ALS #neuromuscular. Source Muscular Dystrophy…

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ATIVESITE | JoeJoe & Dominik Stoop – 2014 MDA Telethon Profile

Award-winning singer-songwriter and host on the ABC hit “Rising Star” Brad Paisley introduces us to JoeJoe and Dominik Stoop, ages 5 and 3, of Los Angeles, have been diagnosed as…

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ATIVESITE | 2012 MDA SHOW of STRENGTH: Justin Moy Profile

Justin Moy, 12, is from Concord, Mass., and enjoys singing, swimming, playing video games and collecting coins. He also loves studying science. He is affected with congenital muscular dystrophy (CMD).…

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ATIVESITE | Reagan Imhoff Profile

Reagan Imhoff of New Berlin, Wis., has spinal muscular atrophy (SMA), a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Her spirit and enthusiasm…

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ATIVESITE | #MDA #Hill Day #AccessibleAirTravel

#MDA #Hill Day #AccessibleAirTravel – advocate to make air travel accessible at MDA.org/AirTravel Source Muscular Dystrophy Association YouTube

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ATIVESITE | We Run Together: Chris Benyo of MDA’s Team Momentum

MDA Team Momentum member Chris Benyo talks about his wife, Denise, who he honored while running the Chicago Bank of America Marathon in 2016. Learn more about Team Momentum at…

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ATIVESITE | #MDA #SummerCamp – Zach’s ‘Note to Self’ 2022

#MDA #SummerCamp – Zach’s ‘Note to Self’ Source Muscular Dystrophy Association YouTube

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ATIVESITE | MDA Funding of Research and Care to Unlock the Cure for ALS Continues – Jinsey Andrews

May is ALS Awareness Month and MDA’s funding of research and care is striving to unlock the cure for this disease. Hear from the leading experts in the United States…

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ATIVESITE | Having Faith in MDA’s Spinraza Research

Meet Faith, a 7-year-old girl from Waco, TX, who lives with Spinal Muscular Atrophy (SMA) type 2 and is MDA’s National Ambassador. Today, Faith is currently receiving and benefitting from…

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