Alexion Pharmaceuticals

We asked three people with neuromyelitis optica spectrum disorder (NMOSD) to write a letter about their journey. Learn what happens when they exchange letters and hear each other’s stories for…

Dr. Galina Vorobeychik, director of the Fraser Health Multiple Sclerosis Clinic at Burnaby Hospital and assistant professor of neurology at the University of British Columbia, joins host Lelainia Lloyd to…

Historically known as Devic’s disease, for years NMO was considered a distant cousin of MS; however, today we now know that not only is NMOSD a completely different and distinct…

Neurologist Dr. Dalia Rotstein discusses the most common types of attacks we see in NMOSD, such as optic neuritis, spinal cord attacks, bladder or bowel dysfunction and nerve pain such…

In this episode, host Debbie Leticq speaks to neurologist Dr. Lesley-Ann Hall about her own journey to diagnosis, living with an ‘invisible illness and why it’s important to get an…

Cat Anderson, Spiritual Director and End of Life Doula at REACH Trauma Response consulting, joins host Lelainia Lloyd to talk about how we can build and strengthen our self-esteem when living…

Patient advocate and founder of The Sumaira Foundation, Sumaira Ahmed, discusses her personal journey to diagnosis and how that inspired her to create a foundation to help others facing this…

In our final episode, we interview patient ambassador and host Lelainia Lloyd. We also discuss how Lelainia became involved in advocacy, the opportunities and challenges she has faced, and resources…

NMOSD impacts every patient differently; in this episode, patients Lynda and Erica discuss their very personal journeys to diagnosis, including their early symptoms and their first NMOSD attacks. Together with…

The path to diagnosis can often resemble a puzzle for physicians, because there are 10k known rare diseases. Promising developments are being made to use genetic testing to accelerate accurate…